and then she snapped: Chiari I Malformation

Chiari I Malformation

Chris has been getting migraine like headaches recently, and had never had them before, so he went to the doctor and was referred for an MRI. He had the MRI last week, and then this week the nurse from his doctor's office called and said,

"We got the results from your MRI and you need to come in".

Um, what? That sounds a little bit whole lotta scary.

She said, "don't worry, you don't have any tumors or anything".

Well, that does help, a little bit, but still, this is his BRAIN we're talking about.

So Chris (understandably) was quite concerned and was able to get an appointment that morning. I went with him. Turns out the MRI showed what's called a Chiari I Malformation, which essentially means (I think) that a teensy bit (like 5-6 mm) of the back part of his brain called the cerebellum (which controls balance) extends into the hole in the skull where the spine attaches (it's not supposed to do this). This can cause pressure on the cerebellum (or the brain stem?) which can result in headaches, dizziness, numbness, and ringing in the ears.

We are in the process of scheduling a consult with a neurologist to get a confirmation of the diagnosis and to see if there are any treatments that are recommended. From what we can tell, generally the treatment is to treat the symptoms. If that doesn't work, it appears as though surgery is the other option.

Would you please pray with me that we can get in with a great doctor, and that it ends up being no big deal really? It's scary when we're talking about my husband's BRAIN, you know?

Click HERE for more information on this condition.

23 comments:

  1. Prayers prayers prayers for Chris and you, dear friend.

    ReplyDelete
  2. Our whole family is praying for all of you. Prayers on the way....

    ReplyDelete
  3. I will be praying!

    Blessings!

    ~Miss ALK

    http://confessionsofamaineteenager.blogspot.com

    ReplyDelete
  4. will pray . . . absolutely! peace to you guys.

    ReplyDelete
  5. I took care of a patient with Chiari last month. From what we learned here with the patient who was in our care, surgery can be very effective when the other treatments don't work. Try not to worry (which I'm sure is impossible) and keep us posted!!! Praying for all of you!

    ReplyDelete
  6. Will be praying for him, you and his doctor.

    ReplyDelete
  7. Positive energy being sent to you all...

    ReplyDelete
  8. Prayers and good juju being sent your way.

    ReplyDelete
  9. omgosh that's crazy!! i'm praying for your husband! that's kind of a major deal...it IS his brain, like you said! i hope y'all find a non-surgical procedure!!

    *hugs*

    ReplyDelete
  10. Thoughts and prayers are with you guys! Hoping for a good prognosis!!

    ReplyDelete
  11. I'll definitely keep you guys in my prayers.

    ReplyDelete
  12. Hi Rachel,

    I am stephanie's sister-in-law juli. I had chair surgery 6 years ago. My brain was 25 mm into my spinal cord, wrapped around my brainstem and cutting off ALL spinal fluid in the back of my spinal cord. It's going to be ok. I am healthy and have very few limitations. We serve a wonderful God who knows our needs and worries.

    I sent steph a long message with some basic info. Feel free to get in touch with me. I will be praying.

    Juli

    ReplyDelete
  13. Of course I will pray. This stinks... hope they figure it out quick!

    ReplyDelete
  14. Sending positive thoughts to you and Chris.

    ReplyDelete
  15. We will be thinking of you all! Good luck

    ReplyDelete
  16. I am sorry for catching up with your news late, your family is in my thoughts and prayers.

    ReplyDelete
  17. Wow... what scary news. Glad that even the people in your comment section have some experience with this and hopefully can offer some support.

    Prayers for wisdom and healing!

    ReplyDelete
  18. Sending lots of prayers and hugs your way....

    ReplyDelete
  19. Um, this is so weird, but me too. Migraine-like headaches for about 3-4 weeks now. Got MRI results on Friday saying slight Chiari. Going to see a neurologist on Tuesday. I would love to know any information you get and am happy to share with you what I find out.

    Also...love the blog. And after reading the About Me section, really like you too. I hate sarcastic people. A LOT.

    Happy thoughts for healthy brains all around.

    ReplyDelete

Note: Only a member of this blog may post a comment.

Related Posts Plugin for WordPress, Blogger...